One of the aspects that were of interest to me in this article was the strategies that are put to ensure that there are efforts made in acquiring informed consent from persons with intellectual disabilities. Through analyzing the article, I wanted to understand new ideas that could possibly improve the manner of conducting the research that involve persons with intellectual disabilities. Through proper analysis and examining the mythology used, I wanted to establish an effective strategy for ensuring informed consent among persons with intellectual in regard to their medical condition.
The study’s methodology entailed interviewing strategically selected candidates. The sampling approach included conducting pre-evaluation to select candidates with the vast knowledge about the subject of study. The qualified patients were selected interviews were conducted after consulting the participants’ guardians or parents. This is in-line with the ethical requirement of obtaining an informed consent prior to participation in the research. The interviewing strategy was employed in gathering important data later used to explain the study’s findings.
This article is of great relevance and should be taken into consideration. It explores a controversial subject of ensuring informed consent among patients with intellectual disabilities. The article emphasized the need of obtaining informed consent while dealing with patients with intellectual disabilities. In essence, it identifies this as a challenge in research but proposes some effective strategies for ensuring informed consent among these persons. For example, guardians could be asked to make the decisions for a person with intellectual disability on whether they would like to participate in the research (Johnson, & Baisley, 2013). Questions were rephrased in instances where the respondents may have failed to understand the question being put through. Where the respondents who are meant to be put up on research failed to understand the question for the second time despite it being rephrased, they were excluded from participating in the research (Johnson, & Baisley, 2013).
The methodology used in this research does not ensure that there is emphasis on providing knowledge of the research to the patients. This is a failure by the medical practitioners since they do not continuously relay the relevant information to ensure that the patients understand everything. Proper evaluation should have been conducted to ensure that the disabled persons are provided with an equal opportunity to provide informed consent on their behalf. Correct understanding of the questions being asked was a method used to evaluate the capacity of disabled patients being able to provide informed consent. This was an indication that the respondents understood and could give a description of what the research was about. Through this, qualified candidates for the research were selected. If the relevant changes in the way information was being provided to the patients, there would have been better out comes from the research. Hence, disabled patients would have been in a better position to provide the relevant information required confidently.
The journal relates to the chapter in this book by the fact that they all focus on the subject of informed consent in research. Similarly, the Article capitalized on integrating the use of informed consent in research participated by PWD to argue the benefits it has to members to both therapist and patient. Accordingly, the Article evaluated the capacity of people’s with intellectual disability to participate in research (Johnson, & Baisley, 2013).
References
Johnson, W, H, & Baisley, D. (2013). Assessing Understanding and Obtaining Consent from Adults with intellectual Disabilities for a Health Promotion Study. Journal of Policy and Practice in Intellectual Disabilities. 10(3), DOI: 10.1111/jppi.12048
Welfel, E, R. (2012). Ethics in Counseling and Psychotherapy. Stamfort: Cengage Learning
