Lorenzo’s Oil, directed by George Miller, tells the story of Michaela and Augusto Odone’s struggle to understand adrenoleukodystrophy (ALD), a rare genetic disease that afflicts their son Lorenzo. This movie highlights the difficulty associated with trying to find a treatment for a devastating disease that affects only a small number of people. These “orphan” diseases like ALD are understudied and often the only treatment option is participation in experimental therapeutic trials. Lorenzo’s Oil takes the viewer on a journey through medical science as two devoted parents try to save their son’s life. Lorenzo (played by Zack O’Malley Greenburg) ...
Essays on ALD
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